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February 26, 2013

What If One of Your Babies Gets Really Sick?

Because I'm a fairly young person, I turned 27 this month, my parents are vital and strong. Most people who get serious illnesses are in their 50's and beyond so they're parents are older than mine. This is great for me because my parents help take care of me but it's tricky for them because they're healthy but their child is not and that seems out of order.

My mum asked me once after yoga if I felt bad because "my old mum can do things that I can't anymore" and asked whether I felt envious. It hadn't occurred to me to be envious of her because she has her own things, like a crushed tailbone after having Elle, and she's worked hard to be healthy. Another time, I was out with my dad and he was hurting from doing tile cutting the day before. He was moving more slowly than usual and I realized that he's getting older too. I told Rory that it's okay if he gets older but that I don't want him to get a really hard disease like cancer....and then I remembered that uh, I have cancer. He must feel so much more sad because he's the dad and I'm his kid. My future father-in-law, a joyful man who doesn't often show his inner feelings, also turned to Kill's mom and asked her  "What are we going to do about our Case*?" after I was diagnosed. It was a rare moment for him to show how he felt helpless in this scenario. I'm not sure at all what it's like to be a sibling whose brother or sister gets very sick. I'll ask Elle to write something from her view sometime.

It's an interesting situation and our family is one of many who have experienced it. I even know one family who lost their baby to an autoimmune disease... which would really be so excruciating. I'm not sure if I can help my parents deal with this by doing certain things but they've said that when I help myself by being active and positive that it helps them. Sometimes, when you're having a low point, as a patient, remember you're value to your community. That's the only thing that I've figured out so far but it's important. If you can't quite be awesome just for yourself then be awesome for a loved one :).

Cailey

*Case is my nickname amongst Kill's family. I got it in Mexico because the "l" in my name was too tricky for native Spanish speakers to say :). Within his family, you aren't really in until you have a nickname, for example, the beautiful girlfriend of Kill's brother is affectionately nicknamed Midge the Fridge.

1 comment:

Mom said...

Sweet Cailey…..

How very like you to wonder what it is like to be the parent of a sick baby when you are the sick baby. Even faced with a serious illness you are always so sensitive to the feelings of others. This is really hard to put into words, but I will try…… I do personally know the fear of having something devastating happen to your child and not being able to make it all better. Nothing scares me more. There is such a feeling of helplessness from all of your loved ones who naturally want to protect you. It is very out of order for you to be sick and we are healthy. When we are at yoga I am truly amazed at how much you can still do with your little broke back, but would feel bad when doing something that no longer works for you. I think your openness in So Long Old Cailey when you accepted the changes in your body, made us all understand. You are helping me, and I think everyone who loves you, by being so active and beautifully positive. I do not know how you do it, and I am sure it takes a lot of your internal pep talks to pull off being awesome, but it does make a huge difference. I can’t imagine how much harder it would be if your attitude was negative and you did not try. Your blog is also a wonderful gift and offers us all more insight into what you are dealing with, besides being so well written and bravely honest. You are letting us all in to share in this journey with you, and that is very special to me. Also, you are living your life to the fullest and making plans for the future! That is the way.
You are beyond awesome and I love you! xoxo