My favorite long underwear or long john's |
Here is how I'm dealing with that phenomena, I always take the medicine that shrinks growths in my body however, the other meds, besides the occasional anti-nausea medication, I don't take. I always fill my prescriptions, in case of emergency, but then they sit in my child-proof cupboard. Why you ask?
- I have liver tumours and the liver is the filtration site for all things, including pharmaceuticals, and I don't want to tax it anymore than cancer already does.
- I also notice that all medications have side effects and in a time of my life when I have a serious internal glitch, like cancer, I like all my other functions to well, function. I personally say to myself that nothing interferes with my sleep or my pooping.
- Lastly, it's hard to listen to my body when it's all confused by 5 different drugs. Does it need more fibre, do I need more sleep and do I have a rash from my laundry soap or my new medication?
So here is what I do:
Pain management
- Topical creams like Tigerbalm, distract from pain
- Kill gives me a daily 5 minute, or longer, back massage along my spine
- I get a 30 minute massage from Reva, former palliative care nurse, at National Spinal Care every week (it costs 40$ and it's worth it because I can sleep with out waking from pain)
- I do weight training of my back to strengthen the muscles
- I walk and do yoga to keep me mobile
- I use a heating pad on my back several times a day
- I give myself self massages in short moments of my day
- I bend properly and don't care heavy items (that's preventative)
- I drink water to flush out excess lactic acid in my body
- I have a warm bath with epsom salts
- I push my shoulders back to keep a curve in it about 50 times a day, even when I wake up in the night
Mental disturbance management
- I try to imagine the best outcomes instead of the worst
- I watch happy or inspiring shows to lift my spirits
- I make myself go outside each day, even though I really want to stay inside in my long john's
- I put on make-up so I feel pretty
- I avoid people who need me to be their crutch as I have no extra crutch skills right now
- I remind myself what others have done before me
- I trouble shoot my pain to limit it in the future. I figured out that my hip pain was from my tightest jeans because the grommets rub on my hip bones. Clever, huh?
- Sometimes I just accept that the body is mysterious. For example, I used to be able to feel when I ovulated. I'd get a short sharp pain in the ovary area monthly and I accepted that. Now when I get short electric shock-like pain in my neck and sides, I accept that it's my nerves and I need to calm my nervous system the best that I can.
- I engage in activities that give me pleasure when ever I can
Whatever you decide about your pill regimen is all right by me, because we're all doing our best. This is working for me and I get a kick every time Dr. Webster or Nancy says "Back pain and what do you take for that?" and I get to say "Nothing". I just tell them that I have a system but that the pills are available to me if I require them. Every once in a while, I'll take a strong Ibuprofen but the Morphine and the Oxycodone they prescribe to me? No way, because they get in the way of my poops, thank you very much.
Happy Pain Free Monday,
Cail
6 comments:
Thanks for the great tips on pain and mental disturbance management. I too refuse to be medicated for many of the same reasons. Taking that road is more challenging in many ways but I think it's more rewarding too (for all the reasons you point out). Suffering from chronic depression can make life very difficult but following the points you outlined allow it to be managed without any medication. I also find it much easier to be surrounded by people who love and cherish (unconditional positive regard). I try to be forgiving of those who are unable to provide that and hang with those who can give freely, laugh easily and accept their own warts and those of others; We've earned each wart! :-)
XMX
I know! Mom said that she posted a comment that I might find too personal but then there was only that one so obviously, our mom is a spammer.
Great comment MX!
Super funny Cail! You know if I locate that spammer they are toast!!!
Cails,
I love the fact that you always state that this is what works for you and that we all cope in our own way....Many people need the anti depressants to be able to function in society and I appreciate that you recognize that for some people the strength is in taking what you need to get on with life
I also totally agree with let nothing interfere with ones poops...a great man once said. " we should keep our minds full and our bowels empty and too many of us do it the other way around
Porb
Porb, you've nailed it. I always take my tumor medication because it really helps me stay active and I take my bone meds to keep my back from re-breaking. I absolutely don't advocate for people to ignore all medications that are helpful... like grandma and her Nitro :).
Such a great post! I really admire the fact that you provide options in such a balanced and unbiased way. Anyone faced with major life decisions really needs to be able to choose the path that is best for them. Your post is very well written too; facts, humour, personal and practical examples. Thanks for all of the great tips.
Uncle Kimm
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