Yesterday was weird, not bad, just weird. I went in to the meeting with Dr. Temple-Oberle like Cindy Lou Who, all sugar peas and light with no idea that I was an anomaly.

It turns out that in Dr. T-O's career
she has never even been referred a stage 4 patient for reconstruction and that the Foothills hospital has
never done a breast reconstruction on a metastatic breast patient! I did not realize this because I forget that I'm not perfectly standard but it turns out that I'm not :). So, my other doctors kept pushing me through the system to meet more people until I got to Dr. T-O (really liked her by the way). I think that they thought if she could meet me then I might have a chance and I think that I do. That's what we discussed, I mean, at the current time, she does not have her colleagues approval but I think that she's willing to perform a single reconstruction if she can get enough people on board. I've been referred to an anesthesiologist who, I assume, will have to decide if I'm hale enough for anesthesia and that extra hour under general slumber that reconstruction requires. Interestingly, I would be cleared to do a double mastectomy without reconstruction, weird huh? But there's a precedent for that and doctors rely on precedents just like lawyers.

I discovered that stage IV's were not offered reconstruction because it was felt too dangerous because we are, supposedly, frail? I guess that we are weakened but aren't babies and elderly people too? I mean my grandpa, Bobbyboy, went under general anesthesia at the age of 73 and they do infant surgeries like the one that was done on Kill's cousin. I think that I'm easily in their realm.
In an ideal scenario I'd be able to get a double double as my mum calls it (double mastectomy with both breasts reconstructed using implants) but in this current realm I could settle for doing one now and the right one on the future when research catches up. Because I don't have cancer in both breasts the other isn't a necessity and doesn't merit the risk of infection and death on the operating table.
Cool huh? I think that both Dr. Temple-Oberle and I are mulling today but we'll see what happens and frankly, I'd love to be an innovator with she and Dr. Mew.
Nothing standard about you at all Cail, you are so exceptional in all ways. I am glad they came around to your way of thinking. I love you xoxoox.
ReplyDeleteHi Cail...I agree with your Mom whom I have had the pleasure of knowing for 5 years and she is now my new Boss. You ARE an innovator and beautifully honest! I have read your blog from the beginning recently and some of your writings brought back memories. I triumphed over breast cancer 3 years ago. Had a lumpectomy, chemo and radiation. In as much as it was difficult to contend with, it changed my life in a positive manner! Like you I researched everthing, asked tons of questions and shared it with all my family and friends. Doing so made it easier for them, I was doing great so I wasn't worried about me. Enough about me! Just know that you have a new admirer and I am a big fan of your Mom. Honest! Lol
ReplyDeleteLJ, I love that you are on the other side of your diagnosis and that you're like me. Being informed is hard but I think that it's worth the trouble.
ReplyDeleteI'm so glad that you're reading the blog :)